We now have our own SA based Facebook group called the Hearing Voices Network SA Public Discussion Group.
Members of the International HVN also volunteer their time to run an open Facebook group, Intervoice. For more private or indepth conversations, there are number of forums related to the HVN, including the Hearing Voices Forum: (http://www.mentalhealthforum.net/forum/forumdisplay.php?99-Hearing-Voices) and the English Hearing Voices Network Forum (www.hvn.forumatic.com). You can find other resources and groups local to your area through http://www.intervoiceonline.org/. You can also join their Twitter page for daily updates at https://twitter.com/VoicesUnLtd For information about the media and hearing voices they have set up a sister Hearing Voices Media Watch FB page https://www.facebook.com/HVMMediaWatch
Our Hearing Voices Network SA Public Discussion Group.is available for anyone to join – people who experience dissociation, multiplicity, or amneisa; their friends, family, supporters, and professionals. This is a public page so please be aware that anyone on the internet can view all of the content. You do not need to join to read the posts, but please feel welcome to join up if you’d like to ask questions, share resources, or contribute to conversations, we’d love to meet you. Thanks for linking in for those who have joined up! There’s a great need for more quality information and support out there, we’d love to hear about other resources and give everyone the opportunity to share our collective expertise and experiences. Feel welcome to post links, ask questions, celebrate achievements, commiserate over setbacks, link to your own blogs, make new friends, and be part of a community.
What is the HVNSA?
We are a network of South Australian people who share resources and information about hearing voices and other experiences generally labelled ‘psychotic’. Please have a look around our website, we have a number of free resources such as our Welcome Pack. All the content is public and you are welcome to share it with anyone.
Why is this group public?
That’s so unsuitable for many people who are concerned about stigma and being outed.
We’re aware of this! The biggest issue with making this group private is that the sense of safety that would provide would be largely an illusion. You have no way of knowing who other members are, and if you share anything in this space that you’re concerned your boss/neighbour/friend/kids might find out, and then one of them joins the private group, your world could come crashing down in a really bad way. So, keeping it public keeps you mindful of only sharing things you are comfortable having in public. You can work around this some by doing things like setting up a different profile that doesn’t use your real name and so on, if you are not familiar or comfortable with Facebook I would suggest that you don’t risk getting involved and possibly accidentally exposing yourself if this concerns you.
The other reason is simply that we don’t have the resources to create smaller private groups to support so many people, much as we would love to! Hopefully as we grow as a community we will be able to offer more and different types of group resources but all our work is voluntary and we are stretched to the limit. We completely understand if this group being public makes it an unsuitable place for some people, you’re welcome to lurk rather than post and possibly learn from some of the conversations or maybe meet other people you can personally befriend or form your own private friendship-based support groups with. 🙂 If you have a question you’d like to ask anonymously, private message an admin and they can post it for you.
Who are the admins?
Our current admin is Sarah K Reece. You are welcome to message any admin in private if you have questions or are seeking resources. We are all volunteering our time but we will do our best to reply quickly and we know that sometimes just a chance to touch base with someone else who has been there can make a big difference! You can also send an email to firstname.lastname@example.org You can learn more about Sarah at her personal blog, and you are welcome to ‘friend’ her on Facebook.
How do I manage my involvement?
If at any time you wish to leave the group, click on the little star shaped tab next to the ‘Notifications’ tab at the right hand side of the facebook page. A little menu will drop down, and one of the options is to ‘Leave group’. Click on that and you’re out! If you wish to return later, just send a request to join again. If you’re feeling a bit overwhelmed with notifications from the group, you can adjust your settings in the ‘Notifications’ tab so you don’t hear about the group in your News Feed.
Are my voices allowed in this group?
Sure thing if you wish! However you all prefer to identify is fine – if you’d rather use a common name for all of you, or if you’re more comfortable identifying who is speaking that’s welcome too.
Why has my post disappeared?
We have had the very occasional facebook gremlin eating posts. If your post disappears randomly, it wasn’t us! Put it back up and let an admin know. If an inappropriate post is ever removed, a new comment is posted to explain why. If there’s a conversation on the page you’re feeling uncomfortable with that isn’t inappropriate, you can click on the menu on the right hand side of the post to hide it.
What is an inappropriate post?
We are a diversity friendly network. You can learn more about what that means and how the HVN works here. We look to key values in how the group is run. We ask all group members to keep these in mind, and to do their best to support the group in these ways:
Diversity, Acceptance, Respect, Safety, and Dignity
Some practical examples of inappropriate posts:
Spam. Sharing of interesting links is very welcome! Links to sunglass advertising is not ok. We have been having a lot of difficulty with spam lately, so our approach is to immediately delete it, and remove the user from the group. If your account is hacked or you accidentally posted spam and you find yourself removed, please message us and explain, you’ll be welcome to come back into the group. 🙂
Abusive comments, or being disrespectful to someone else. Everyone is absolutely welcome to have different opinions and to discuss them and disagree, but at all times the conversation must remain respectful. Sometimes this can be a challenge for hot topics and at times admins may ask for certain conversation threads to be closed and re opened later when people have cooled down. If a comment is just a bit off track the admins will gently remind people. If cursing, threats, or overt hostility are being posted the posts will be deleted and possibly the posters too until people have calmed down.
Graphic descriptions of abuse, trauma, nightmares, sex, and the like. It’s absolutely okay to talk about these things, but it’s also important not to traumatise other members of the group with detailed accounts. So, for example, you could write ‘I was molested as a child’ rather than ‘when I visited them, they used to do this and this to me’ or ‘I attempted suicide when I was 20’ rather than ‘I overdosed on these tablets and then did this and then someone found me’. If you’re not sure about something, ask.
Warnings about other people. This is a tough one. Sometimes people want to warn other groups members about someone they consider to be abusive, part of a cult, or in some way dangerous. Sometimes people have had terrible experiences in other online groups, in their personal lives, or in mental health services. We understand! Cyber bullying is a huge issue. Sometimes people get confused and delusional and someone gets caught in the crossfire. Sometimes people are malicious and pretend to have been hurt by someone else in order to hurt them. Sometimes people get hurt terribly by other people and want to warn their friends. There’s no way for us to tell the difference, so we don’t allow these posts in this group. You are welcome to critique services (including DI resources), but not to slander individual people or link to individuals online such as your treating doctor.
Admins will always try to be polite and respectful and try to remind people if things are getting off track. Even if someone makes a big wrong step and is removed from the group, they are always welcome to discuss the situation and rejoin if they want to be part of things again. If you’re unsure about something, feel welcome to ask!
I’m in crisis. Can I post?
Please don’t! We get it, but it really stresses other members and can be very traumatising. We know that many of us are isolated and struggling to find appropriate support. For other crisis support suggestions, please check out our sister network page: Dissociative Crisis Support Pack, or contact:
- ACIS 13 14 65
- Lifeline 13 11 14 (free from landlines and mobiles)
- Kids Helpline 1800 55 1800 (for young people aged 5 to 25)
- Samaritans UK 08457 90 90 90
- Samaritans USA 1800 273 8255
For crisis supports in other regions, ask the group or an admin and hopefully we can direct you.